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Hi Chandra. We are glad that you are mostly doing well. I had a BMT for PNH 4 yrs ago and I still have some occ muscle/ tendon/ joint pain and stiffness. It seems to be slowly improving since I no longer take any anti-reject drugs. I try to do some stretching exercises on a regular basis and that seems to help. I just walked 2 miles of so on Sunday w/ out any issues except for some minor pain related to tripping on my stairs a few weeks ago. I had some pretty extreme swelling in my legs and feet for a while after my transplant and that has mostly gone away. Unfortunately, the side effects of a BMT and associated drugs don't always go away quickly. We all wish you continued success.
Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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