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Epival
I saw my Dr. today, good news, the last BMB still showed no chromesome changes and my C-Kit gene is normal as well.
Since I have been denied Rivlimid from our insurance company, they have decided to try a new drug on me. Apparently, my Dr. just went to a conferance with a Specialist in MDS from Germany, they have been having great luck with Eqival a anti seizure med for MDS RA, low risk patients.
Weekly CBC's and few side effects. I have to have another transfusion next week, hopefully that is the last one for a very long time. Back to see my Dr. in Sept, unless he sees a problem from the CBC reports.
Anyone heard of this treatment?
Lynn
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