Hello Mike,
Not a survior yet but pray to be soon
I just joined the forum on 1/25/10
I was happy to see you thread on surviving MDS.
I have had MDS (rarrs) going on five years now.
My reds are messed up, in 2005 my Hemaglobin was in the middle 11's
now I'm fluactuating in the 8's.
The only treatments so far is Procrit and now Aranesp both help to produce
more red blood cells.
My doctor is in the upmc group Dr. Sun mentioned supressing my immune system, they think it may be spiked, seen by a flag marker in my DNA
I very interested in your treatment. please contact me.
My e-mail is
vin50@hotmail.com
God Bless You
Vince