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Old Tue May 31, 2016, 02:37 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Rainbows and Glitter. MDS is very rare in people as young as you, but you probably already knew that. I have a cousin who is about 70 who has a friend; (abt the same age as my cousin), that had MDS and went through a stem cell transplant in 2011 right before I had mine. I spoke to him about his experiences and what to expect. This individual also had cancer earlier in his life and those treatments prob weakened his bone marrow. Ruth Cuadra is correct in regard to photophresis. It seemed to help me w/ my GVHD. I was also treated w/ nilotinib, and or imatinib off and on for a few years as well. I have posted a number of comments about my treatments that you may find helpful. Good luck in your treatment.

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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