How I feel for you having small children and having to make the world go on every day. I am a 57 yr old Grandmother with this horrible disease and I'm having trouble getting through the days and try and absorb all the medical facts. Your story told it all. I also find it very hard some days to believe that the rest of the world is going forward and my life is in medical limbo. I am getting ready to start medicine for remission and have been lined up for transplant as soon as this is achieved. My life does not belong to me right now and that is really scary. I find it hard to go to work each day and pretend that my world is not a total train wreck, no one at work has a clue that anything is wrong with me medically, and I have those times when I go to the restroom and either throw up or sit and cry. Helps to hear from people like you. Let's keep up the fight together.
Lindano
