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tree,
I'm sorry to hear about your son's undiagnosed illness. I'm sure you and worried and frustrated, and your concerns about getting a proper diagnosis and about iron buildup are justified. It would be hard for us to second-guess the doctors who have all of the facts but we could suggest questions to ask.
Are you seeing doctors with expertise in blood and bone marrow diseases or working through his regular pediatrician? You need to be speaking to experts who are willing to provide explanatations and keep you informed.
Did they tell you the results on the bone marrow aspirate or share the report with you? I assume he had a bone marrow biopsy as well. You'd want to know about the quantity and quality of bone marrow cells, i.e., if cells are scarce or plentiful and if they are normal or abnormal in shape and size.
Are his other blood counts low or normal? Does he have a normal absolute neutrophil count (ANC) and absolute reticulocyte count (ARC)?
CDA is genetic. Is there any family history of blood disorders?
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