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Old Sat Feb 22, 2014, 11:17 AM
TLL414 TLL414 is offline
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Join Date: Feb 2014
Location: Wellesley, MA
Posts: 5
Newly dx with PNH

Hi... my name is Tom and I have been diagnosed with PNH. No apparent symptoms' yet other c/o fatigue/tiredness. I have had just under the low range in my blood tests results for several years so my primary care doctor wasn't too concerned... but my wife was. She (my wife) requested that I see a Hem/Onc doctor because she felt that (she works in medicine) 'if a woman has slight anemia, doctor's are not too concerned... but if a man has any anemia, it should be worked up, and not disregarded."

My LDH has been high 800-1,200 and I recently received the following test results. Can this information tell me what my clone size is? I know nothing of biology!

Paroxysmal Nocturnal Hemoglobinuria and related Disorders by Flow Cytometry. Cytometry part B

POPULATION(S) GATED:
Erythrocytes/Granulocytes/Monocytes
RBCS:
Type I: Normal CD59 level. --- 76.07%
Type II: Partial CD59 deficiency --- 0.08%
Type III: Complete CD59 deficiency --- 23.83%

GRANULOCYTES:
FLAER/CD24 deficiency --- 28.12%

MONOCYTES:
FLAER/CD14 deficiency --- 55.83%
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