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Ann,
Shortly after I was diagnosed with MDS RAEB 1-2k in July 11 by a bone marrow biopsy, I was referred to a transplant specialist. Following a 2nd biopsy, the dr. explained the only ''cure'' would be a transplant. I did receive 2nd and 3rd diagnoses, including Dr. Steensma of Dana Farber in Boston and it was the same: a transplant was the most viable route, sooner rather than later. I thought I would have one by November, certainly by December, so for me January seemed like it took so long. It seems based on my overall health profile, that there was a window with the most chance for success. Following 3 rounds of Vidaza, which did not improve my blood count #s, but may have reduced or held the blasts at bay. I will have my 4th bone marrow biopsy this Wednesday for most current information. I will undergo the transplant, weeks before my 65th birthday. I feel healthier and stronger than I have in months and am keeping a positive attitude.
Of course, I was extremely fortunate that a match was found early on.
Donna
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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