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Sue & Dave, I have a primary (SCT) oncologist/hematologist that is an hour and a half away and a local oncologist/hematologist where I get the azacitidine (Vidaza) seven days a week with a 28 day rest between cycles. During the stem cell transplant I was at the hospital 17 days and lived close to the transplant hospital for 80 days.
I am very surprised to learn that there is no location closer than 6 1/2 hours from central New York for a stem cell transplant. I would encourage you to have the stem cell transplant as soon as Dave's health permits if that is in the plan. It sounds like that is the way your doctors are leaning.
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
Last edited by bailie : Wed Dec 28, 2016 at 12:18 PM.
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