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Good Luck Vera
Vera, thanks for sharing your story. Making this decision is something nobody wants to make. It is almost like damed if you do,and damed if you don't. My wife Nellie has little option but to stay on Vidaza treatments in the hope of extending her life. Because of her poor health otherwise, her chance of surviving a transplant is very slim. She is 64 now and she and I have talked about this subject over and over again. She has decided to stay on the treatment and not risk the transplant, even though a perfect match has been found.
The deal breaker for us is all the other health problems she has. I feel we would jump at the chance for life w/o Vidaza if she was in the same situation, health wise, as you are so blessed to be. Probably an MDS specialist for a second opinion may be wise. Just to make sure you are aware of all the options in the trial stage that you may want to consider, and to verify your condition. Then once you are satisfied you have done your due diligence, go for it, we would.
Not a simple decision by any means, but God be with you and bring you peace of mind, once your decision is made.
Eli
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Eli, husband of Nellie (64), dx 3/08 MDS RAEB-1 w/abs, 2nd BMB 9/08 after 4 cyls blast dn to .5, Vidaza reduced 50% on 11/19 after sudden drop in CBC, 8th cycle completed 12/26/08. BMB 2/09 blast 17%. Seven day Induction Therapy completed 3/23/09, Started Salvage Therapy 5/5/09. Stopped 5/8/09.
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