Hello there,
My daughter was diagnosed with Aplastic Anemia/Hypoplastic MDS in May 2012. As well as HypoThyroiditis and Gilberts Disease... what a whammy...
We were told that she would need a Bone Marrow Transplance in Nov/Dec 2012 but her blood levels keep fluctuating so no treatment has been needed at this time.
Her last Blood Transfusion was Aug 30, 2012 and so far things are still holding.
Has anyone else overcame this Bone Marrow Failure without treatment?
We are just confused because all we keep having to do is have follow up blood work bi-weekly and keep an eye on her. Not sure if something is going to happen or what to think...
They have currently found her 5 potential bone marrow matches and I haven't heard anything other then that form the Bone Marrow Dept. at Children's Hospital.
Please, if you have any advise or can fill me in on your situation, that would be greatly appreciated.
Thanks, Anne
