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Old Thu Apr 1, 2010, 02:55 PM
mausmish mausmish is offline
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Join Date: Mar 2010
Location: Maryland
Posts: 453
Thanks, Neil. Both my hematologist and my oncologist are strongly encouraging me to try to get the BMT. They've submitted me for a preliminary registry search for a matched unrelated donor. My husband and I are the ones resisting, struggling with the idea of having such a dangerous and debilitating procedure when I'm currently feeling so well.

It would be wonderful to hear more stories of long-term azacitidine (Vidaza) successes. For me, it seems like a miracle drug. When I was first diagnosed three months ago, I was told that my life expectancy was only about six months if treatment failed and I did not get a BMT. Having been healthy my entire life and coming from a long-lived, healthy family, I was stunned. My own positive response to this drug, as well as the success stories I've read here and elsewhere online have given us much hope.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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