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Originally Posted by Susan L
Hi - I looked up that drug and it was taken off the market June 2010. FDA called it off for treatment. Anyway, I am still hoping this will work. I did alot outdoors today and it felt great. (Alot meaning more than nothing---lol) The weather is perfect out here right now. The dreams are still really weird, I do think it is from the medication and I'll mention it next week some time if it keeps up. I bet Mike is pretty anxious to get this going. We all will be sending prayers and wishes your way. Susan
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Hi Susan, Just wanted to give you a little encouragement. My husband has been on Vidaza for a long time with very good results. We are also Raeb-2. There are alot of ups and downs with this disease as you know. Try not to let the negatives overpower you. I have found that I will fret about this or that only to see it all change within the next week. Usually an improvement. Take care and just know that you are being thought about. Take care of yourself. Sincerely, Rose