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Old Thu May 24, 2012, 04:28 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Iron overload

Hi Shirlee,
You know the doctors don't look only at the ferritin level but how severe the disease is and how the liver tests are when they decide about iron chelation. It takes years to develope liver and heart damage from high ferritin levels.

For your husband it is much more important to treat the AML and we hope that he will have a good response without adverse effects.
Kind regards
Birgitta-A
73 yo, dx 2006 MDS Interm-1, received 142 units of red blood cells 2006-2010, treated with Desferal, Ferriprox and Exjade for iron overload. July 2010 ferritin 5600 after txs every week. No txs since Sept 2010 after treatment with Thalidomide + Prednisone since June 2010. Latest ferritin value 978.
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