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Old Fri Dec 20, 2013, 03:51 AM
teo teo is offline
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Join Date: Oct 2012
Location: Johor, Malaysia
Posts: 117
Ferritin values

Quote:
Originally Posted by Mseth View Post
Hi Teo,

How much difference do you see in ferritin values? I think many labs give diff results also.

Good for the weight gain with this disease, my mother could do with a few extra kgs, but she did not gain any weight with EPO. Is there any benefit showing with Danazol or is it too early to say?

Asunra, manufactured by Novartis, Switzerland is the chelation drug available here, which is same as exjade. 30 tabs of 400 mg cost is approx US$55. The starting dose is 20 mg/kg. You could send me a pm if you need more information.
Hi Mseth,

Ferritin for the initial test is reaching almost 10,000 but the final one is 4864 and they retest again, the level was 4318. All these results are from the same blood taken on the same day.

Yea, cant really tell as it is too early.

Thanks for the info on Exjade.
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Teo, son to Goh, age 71 dx mightbe MDS with low HB & RBC Jan 2012; FE 7755 on Nov 2014 - 6*500mg ferriprox; BT every month since Feb 2012; BMB done July 2013 - no conclusive evidence of MDS or PRCA; EPO stopped Nov 2013; Danazol 200mg*2 starts Nov 2013 + cyclosporine 25mg*4 starts June 2015
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