Thread: Transplant Time
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  #28  
Old Thu Sep 17, 2015, 12:06 PM
PaulS PaulS is offline
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Join Date: Sep 2014
Location: New York
Posts: 247
Hi - Tracey I'm sorry for your delay - hopefully they will fix you up and get you back on track. I was delayed for several months - waiting in limbo can be tough.

The last few days have been difficult for me - extraordinarily tired, not much appetite, miscellaneous pains (more related to the bed then anything else I think). My counts are still down around zero and I'm praying to engraft. Meanwhile pain meds help somewhat but I'm still quite exhausted most of the time.

Dan's suggestion about showering was a good one - although it takes all my energy to get into the shower, I always feel good with the water cascading down my face.

I'll try and keep you posted as things move along. Its been one week since the transplant!
Paul
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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