Good question - we're hoping the Vidaza works for a considerable time and then not sure - probably BMT if new drug doesn't come along. With low risk we don't want the BMT to kill me but on the other hand quality of life is also a concern if I'm getting very frequent transfusions. Really don't like any of the options. Baile - how are you doing now? All the best.
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Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
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