Thread: need your help
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Old Fri Jan 11, 2013, 11:58 AM
BrianFlaigmore BrianFlaigmore is offline
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Join Date: Jul 2012
Location: San Diego CA USA
Posts: 27
When I had my transplant I had only had been transfusion dependent for seven months, but I was receiving both red and platelets two or more times per week. I have also not had as much ATG as you pre transplant but I did have hATG four months before. So I was not in the exact same place as you and I can tell you that the transplant is intimidating. With that being said I am half a year post-transplant and life is beautiful. I have even began playing ice hockey and rock climbing again, something I could never even have imagined while my platelets were low. My doctor has given me a clean bill of health and I am of off 90% of my meds. I know that this is not always the outcome, but it is the point of a transplant. It's a chance at a full life. It's a scary ride, but it's paradoxically a beautiful journey of self-discovery. I would like to encourage you at this time that this is the best possible option. If you ever have any questions please feel free to ask.

Cuando tuve mi trasplante tuve sólo habÃ*a sido una transfusión dependiente durante siete meses, pero que estaba recibiendo roja y plaquetas dos o más veces por semana. También no he tenido tanta ATG que pre trasplante, pero tenÃ*an hATG cuatro meses antes. AsÃ* que no estaba en el mismo lugar exacto como usted y puedo decirles que el trasplante es intimidante. Con dicho esto soy mitad post-trasplante de un año y la vida es bella. Han incluso comenzó a jugar al hockey sobre hielo y escalada de nuevo, algo que nunca hubiera imaginado mientras mis plaquetas estaban bajas. Mi médico me ha dado un buen estado de salud y me voy de 90% de mis medicinas. Sé que esto no es siempre el resultado, pero es el punto de un trasplante. Es una oportunidad de una vida plena. Es un viaje aterrador, pero paradójicamente es un hermoso viaje de autodescubrimiento. Me gustarÃ*a animarte en este momento que esta es la mejor opción posible. Si tiene cualquier pregunta por favor no dude en preguntar.

Paz y alegrÃ*a, Brian
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26m Mystery liver failure 6/11 treated with prednisone. Falling counts, Rituxan attempted for Evans syndrome 11/11. Tx dependent and SAA dx 12/11. hATG 2/12, no response. MUD BMT 5/6/12. Living life!

Last edited by BrianFlaigmore : Fri Jan 11, 2013 at 12:03 PM. Reason: translation
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