Watch and wait
I was diagnosed as intermediate risk 9/12. Watch and wait can be boring which is good. At first I had frequent blood tests and now down to every three months. Blood values have not shown any trends except a slow downward drift of platelets.
Suddenly 3 weeks ago I suddenly was totally unable to function. Sleeping most of the day. A CBC revealed that my numbers had tumbled. After stopping Arimidex my values are recovering.
I was so worried that I had slipped into AML. But bone marrow test shows not a problem with AML. Thank goodness.
But it did get me thinking about the risk of AML and what the symptoms would be. I haven't found any information on the web other than some estimates of the number of MDS patients who develp AML/
Thoughts anyone?
Carol
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Carol, age 75, diagnosed with MDS 9/2012, on wait and watch, recently had blood values drop probably due to Arimixdex, values coming back, but still serious fatigue, recent bone marrow text showed only 2% blasts
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