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Old Thu May 5, 2016, 08:37 AM
italianburrito italianburrito is offline
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Join Date: Apr 2015
Location: VB
Posts: 61
Quote:
Originally Posted by bailie View Post
I'm sorry for your father's situation. It sounds so similar to what mine was. I had an infectious lung disease at about Day +210. They immediately took me off tac and prednisone and put me on Vidaza. My blasts went up to 33 percent and I went from 100 percent donor down to 85 percent. After two cycles of Vidaza I was back to where I was before the infection to 100 percent donor, no genetic mutations and feeling well. Of course we don't know how long it will last, but so far it has been eight months of remission.

I think (following Greg's lead), that a person's telomeres become vulnerable during an infection and can cause hopefully temporary susceptibility in a person's chromosomes. My choices were the Vidaza or a DLI. We wish you the best outcome.
Bailie, If you disease relapses will you do a DLI? Why did you chose chemo over a DLI? Just curious as I would imagine they will be giving my dad options going forward.
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Daughter of father diagnosed with MDS RAEB-II intermediate risk due to normal cytogenetics. Blasts at 13% peripheral blood at diagnosis with no cytopenias. 6 cycles on Vidaza then on to SCT at Duke. BMT from my brother and now showing signs of relapse. DLI in the works.
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