[Helene]

Marlene and Tom,

Thank you very much for your reply. I am still learning about bone marrow failure. I am trying to get an appointment a NIH. Even though I am going to teaching hospitals that do bone marrow transplants, they seem not to know what my diagnosis is. I will keep trying to get an appointment at NIH.

I am going to have a long talk with the hematologist I am seeing now, as I get my blood work results about a week or two after I meet with him. I will start taking charge of my health and will continue to tell him what I need (I would like my CBC results the day I meet with the doctor). I will also starting requesting copies of the results. It will be a learning process.

Thanks so much for your replies. It is good to hear from other people who are dealing with bone marrow problems.

Helene