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Old Sat Mar 4, 2017, 04:19 PM
Data Data is offline
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Join Date: Sep 2014
Location: Florida
Posts: 245
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Julieme,
At Day 100, my counts were similar to your husband's except my platelets were low normal. Around Day 188 my platelets took a nose dive down in the single digits. I got platelet transfusions every other or ever third day for about two months. My doctor increased my prednisone. The platelet count climbed back (to 100) up for a while and then took another nose dive to which they have not recovered. He now has me on Rituxan. I have gotten two infusions and have two more to go (spaced out weekly). At that point he says he will evaluate whether the Rituxan is helping or not. So far, it hasn't - I am still getting platelet transfusions every couple days.

I am curious as to what your doctor thinks and what he does. Best of luck to your husband and you.

Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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