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Old Mon Sep 15, 2014, 02:45 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Thanks for the encouraging words. I did my best to best to try and stay positive the whole time, which is hard for anyone to do. One thing I discovered is that a lot of non medical ppl don't really understand PNH, immune systems, bone marrow failures, etc., the associated drugs and their side effects, etc. So don't be surprised if you run into some of that. And if you are going to ever receive a transplant, be prepared for A LOT of tests, thousands of pills, and a lot of dr's apppointments. With that, an increased risk of other bad diseases related to the treatments and associated meds, but I would do it all over again. I was told that my anon donor was an absolute perfect match, so that helped a lot as well.
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