Thread: patients in CT
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Old Wed Nov 26, 2008, 01:21 PM
Maddie C Maddie C is offline
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Join Date: Apr 2007
Location: Shelton, CT.
Posts: 8
Hi Beth,

I saw Dr. Klimek at Sloan Kettering, they seemed to want to go with a transplant so I then decided to go back to Yale and talk with Dr. Seropian who I had met before and liked very much. He is the transplant doc there and I thought it would be better to be closer to home. But they surprised me by saying wait. I have 4 brothers & sisters but none were a match. I recently went on matchview and saw there were 34 potential donors when in 06 I had only 1, 90 per cent match. I have a blood test scheduled with my local hematologist soon so will see if he thinks we should do something different. I have nothing being done for the anemia as yet, my rbc, hgb and hct low but I can function. Can you tell me more about the fibrosis, how is that DX?
Hey have a Happy Thanksgiving. Thanks Maddie
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