Thank you Cheri so much. I have a "community hemotologist who uncovered the MDS and provides the Vidaza, and a Transplant dr. at the hospital, but I don't have an MDS expert. I am wondering if I should. What do you think?
I so appreciate your posts!
Donna
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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