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Old Wed Oct 23, 2013, 11:35 AM
RosP RosP is offline
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Join Date: Oct 2013
Posts: 3
Hey Melissa. My 16 year old is having similar diagnosis queries - AA v MDS and has been diagnosed with PNH too. We are in Northern Ireland but liaise with a consultant in Bristol. At 16, we too are considering the fertility implications of a BMT for her and are awaiting results of donor matching tests on her two sisters. Bethany's illnesses seem to be genetic and we are awaiting test results to identify the faulty gene. Like you, Bethany is exhausted and unable to exercise. We have been advised to try yoga and pilates as they help with breathing, toning and relaxation. Not as rewarding as a 10k run I know but you would be keep your body healthy and improving some of the symptoms perhaps. We are frustrated at the lack of decision re final diagnosis and treatment. I am so glad that you are on the path to a very positive treatment which should allow you to return to normal activities in the future.
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