Quote:
Originally Posted by PatyV
Hello, my name is Patricia and I'm a 45 year old, Mexican female suffering from Myelodysplastic Syndrome. I would like to meet people who also have this syndrome and be able to talk and ask them about this condition. I am currently being treated both in my town's regional hospital and at KU Research Hospital with Vidaza. Hopefully I'll be able to meet some people who can help me.
Paty
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Hello Patricia. I too have this syndrome and although I am new to this, would be glad to be your cyber buddy when I can.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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