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Old Wed Apr 12, 2017, 12:12 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi worriedmom,

I am sorry to read about your little one. As Bob has suggested, now is the time to get a second opinion, even if you are at a good center. They may want to repeat the bone marrow biopsy at that initial visit with their own pathologists.

Don't feel bad about subjecting your daughter to another bone marrow biopsy. They only really hurt for about 10 seconds. The information that they provide is invaluable though.

I hope you find answers!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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