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Old Sat Dec 2, 2006, 11:39 AM
John Clark John Clark is offline
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Join Date: Aug 2006
Location: Brigg, Lincolnshire, England
Posts: 35
Thanks to all who replied. Now in fifth month of Vidaza with counts going up and down - overall just slightly up. Platelets a worry - holding at around 20-30. Constipation VERY severe. Told it was caused by Anti nausea drug but even without this drug still severe. Tried 5 different prescribed medications for constipation - no effect.

All shots into tummy (66 in all so far). Seems to burn from inside - smarts like sunburn on outside with similar skin peeling and a residue of a brown sunburnt patch.

No real effects after first two cycles but as time progresses effects of the chemo become more annoying especially nausea, constipation, loss of appetite and constant sleeping (anemia I guess).

Had some very low counts - Hb 7.9 Platelets 10. Neuts and WBC seem to vary over quite a wide range Neuts 1.2 to 0.30 - WBC from 1.0 to 3.0.

Waiting results of another BMB. This should show any progression in the MDS either up or down.

Regards to all,

John Clark
MDS (RAEB2) Age 71 (soon) Diag. Jan. 2000
Still on Aranesp and Neupogen with Warfarin.
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Age 71 Male. Diagnosed MDS(RAEB2) in January 2000. On Aranesp, Neupogen and Warfarin. Counts down in January this year. Started 1st. course Vidaza August 2006 when all counts crashed.
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