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Old Tue Sep 17, 2013, 12:31 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Quote:
Originally Posted by mausmish View Post
Heather,

I was the transplantee. My husband and I kept a blog, mausmarrow.com. If you go to the archives for December 2010 - May 2011, you will get some insights from our experience. My biggest complaints were nausea and dysgeusia (everything tasted bad). My husband made me special milkshakes to keep me going. We cleaned out the fridge and pantry completely and started everything fresh. I didn't keep leftovers for more than a few days. Before coming home, we had the house thoroughly cleaned and took up the area rugs for the first six months. We didn't permit anyone to visit who was ill. We keep hand sanitizer by the door for everyone to use as they enter.

Mostly, I needed lots of rest. I've never been partically active - basically a loner computer nerd, ha ha, so my recovery was not difficult from from the standpoint of restrictions. I had trouble concentrating so watched tv shows instead of my usual computing, video gaming, or reading. I am not usually a tv watcher but that's all my attention span would allow the first few months. I used my ipad a lot with simple apps. I didn't really need much assistance with anything. I waited a few months before driving, again because of attention span. My cats were close by my side to keep me entertained. Hope this helps.

Best wishes to you both!
Karen
Karen idk why I didn't see your response last time! Thank you! It was good to read your point of view . Interesting about the attention span thank you. I will keep that in mind while hes healing.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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