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Old Mon Mar 25, 2019, 05:31 AM
Meri T. Meri T. is offline
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Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 174
Dear Terry,
My condolences. May your Mother rest in peace.

When I was diagnosed with MDS, my doctor said we could watch and wait for a year, maybe two, then we would talk about an STC. However, in the following months, my neuts dropped, and worse of all, my platelets dived. I had platelet transfusions every 10 days.

That was when we went for my SCT, only 9 months after diagnosed.

I think your Mother's doctors did their best. In this disease, every person is different. I hope you can understand this, Please take care.

Meri
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Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
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