Hi Mike. You've got plenty of reasons to be frustrated: having Revlimid stop working, no luck with Dacogen, low counts and transfusions, a vacation cut short, your doctor leaving, not to mention having MDS in the first place.
If you're looking for a silver lining, it's that you've gone years with MDS and that's a very good sign, that you've needed transfusions only occasionally, and that you are in the 5q- group that gave you some success with Revlimid.
Don't worry about boring us with CBC details. Many patients here track their counts, comment on them to each other, and help each other understand them.
Have you had a consultation with the MDS experts at Stanford University? There's a lot of research into MDS going on, so they know more and more about treatment each year, certainly more now than when you were diagnosed in 2003. While you are waiting to get a new doctor, it might be an ideal time to get a second opinion.
You can make some friends here, contact other patients through the Aplastic Anemia & MDS International Foundation's
Peer Support Network, and look through our
Your Local Area forum, where there's a thread by someone in the Santa Cruz area.