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Ellen,
I suppose it could be a coincidence but since these symptoms have occurred twice after cyclosporine reductions that's strong evidence of cause and effect. These are not symptoms you can or should tolerate so I'd expect your hematologist to increase your dose in the hope that it will alleviate the symptoms. Assuming it does, you can try tapering again, but it'll have to be later. Tapering has required some trial and error for many patients.
If it's indeed "some immune problem" then returning to the higher cyclosporine dose makes sense. Since cyclosporine is an immunosuppressant, it's logical that a reduced dose could reveal immune system issues that are still a problem but were previously controlled (suppressed) by the drug.
Waiting for email from a neurologist seems like a slow approach, and changing your dose without talking to the hematologist again is less than ideal. Any chance of talking to them both today, or getting them to talk to each other?
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