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I think that happens a lot. The blood disorder takes front and center stage. So many things can be overlooked or dismissed as a result. Their priority is to work on the blood disorder. Quality of life and other seemingly minor complaints go on the back burner. I understand the need to prioritize. I think having a doctor that's focused on your general health and wellbeing can be helpful.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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