Thread: One-day Patient Conference in San Francisco, CA, July 20, 2013
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Old Sat Jul 6, 2013, 01:09 PM
NLJabbari NLJabbari is offline
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Join Date: Aug 2006
Location: San Jose, California
Posts: 139
Aamds San Francisco Conference
Hello Everyone!

I just wanted to let you know that my family and I will be attending SF Conference. We will be joined by another local AA Family as both our children who are now young adults; were diagnosed around the same time. We have traveled this road together thus far.

I would like to know if anyone else will be attending so that we can perhaps meet and say hello.

Thanks
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic...
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