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Old Thu Sep 18, 2008, 07:53 PM
DomesticDeeva DomesticDeeva is offline
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Join Date: Mar 2008
Location: Washington
Posts: 11
Exclamation Thank you

Thank you so much to everyone who has responded to this thread. Your insight and experience has been very helpful. The case worker at Sacred Heart Children's Hospital in Spokane (Karen Gordon) was a huge help to us. She was able to get the hospital's pharmacy enrolled in Amgen's (mfgr of Neupogen) Pharmacy Replacement Program. We just barely qualified financially for this program and were able to get four vials per month (now that Haylee takes weekly injections instead of daily) free of charge and Amgen replaces the vials to the pharmacy. This has been a huge blessing for us. However, keep in mind, should anyone be participating in this program, that if you are also attempting to qualify for state financial aid, Amgen will remove you from the program if you do actually qualify for any type of state aid. Also, the pharmacy will typically not inform you of this until it actually happens. This happened to us right around the time state aid disqualified our status based on my husband's small increase in income even though we were still not able to afford all of Haylee's meds and there was no change in our maxed-out pharmacy benefit. Long story short, many phone calls and emails later, we were able to get back on the Amgen financial assistance program.
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Shana & Matt, parents to daughter, age 11, diagnosed Very Severe Aplastic Anemia Feb 2008 (at age 10); currently undergoing immunosuppressive drug treatments.
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