Hi jjcanada and Windhorse1,
My husband was the first MDS guinea pig at NIH for Eltrombopag. He has been in remission for over 5 years after needing over 125 blood/platelet transfusions before the trial. Please check out my posts - there are many regarding Promacta. I'll be glad to answer any questions I can remember the answers to.
He has been in clinical trials at NIH since spring of 2009.
I wish you both well.
God Bless,
Sally