Need to Know More-Mom has MDS
Dear Junglegirlsue;
My husband was diagnosed with MDS two years ago when he was 75. His MDS also caused from chemo treatments he received 15 years earlier. You can read abou it under My Story.
Anyway, he has been treated primarily with Aranesp or Eprogen/Procrit depending on insurance coverage. He has had only 6 units of blood in the past two years. His HGB has gotten as low as 8.5 and is now at 9.5. He has less energy but still manages to walk 2 to 3 miles every day. It isn't a fun disease but Don is getting along reasonably well. Some days are better than others.
Take care. Hopefully you can have her around for several more years.
Joan
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Joan, wife of Don, 80, diagnosed MDS-RCMD 2006, on 300 mg Aranesp every 2 weeks. Only RBC affected by MDS.
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