View Single Post
  #2  
Old Mon Jun 14, 2010, 12:30 PM
Neil Cuadra Neil Cuadra is offline
Owner
 
Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,553
abc123,

Three cheers for you for matching someone and being willing to donate stem cells! Many of us in the registry never get that phone call.

There are a few possibilities about the postponement. Least likely is that the patient suddenly got better, or better enough to not need a transplant at the 11th hour, especially if they told you it was a relapse. More likely is that the patient's condition worsened so that he or she is no longer healthy enough to risk a stem cell transplant. For example, they could have developed an infection that must be brought under control before the transplant can proceed. It could be temporary or you may never be re-scheduled for the procedure and left to wonder if the patient survived.

How long before the transplant day did they call it off? If it's very short (a day or two) then they probably began the transplant preparative regimen, and it's bad news to call it off after that point.

The woman who donated bone marrow for my wife's transplant was later called as a match for another patient (that's pretty rare, I think) but the procedure was canceled and never rescheduled. She never learned more than that. The lack of information can be frustrating but I guess they have to protect privacy so they tell you little beyond what you need to know.

From the patient's perspective, they have to deal with the relapse but have the comfort of knowing there's a stranger out there willing to step up to help them. That must be quite a powerful incentive to fight to get better! I doubt that the doctors changed the overall treatment plans, since there are no "let's give it a quick try" treatments for MDS, only supportive care, transplants, and drug therapies over longer periods of times. So let's hope he or she had only a small setback that can be corrected.
Reply With Quote