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You might want to post this question to
"Band of Mothers in the fight against Aplastic Anemia" a group on Face Book. There are many parents of young children in this group who might relate to your experience and therefore offer adivce.
Good Luck
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06/2004 my son was dx with SAA at the age of 10. No sibling BM match. He underwent ATG (H)/CsA. Relapsed 05/12 & dx'ed w/PNH. Currently in wait/see mode for Solaris as he is asymptomatic... 
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