Hi Don't know what happen but my post disappeared into space.
I'm now having transfusions every ten days do feel a lot better after the treatment but end up with a heavy body feeling, also my stomach jumps, does anyone else get this. I'm way out of whack with my sleeping patterns wish I could get that routine back. They say my heart is o.k. blood pressure on the low side I'm about 5ft 4. and weigh 68-69kgs. Couldn't tell you what my blasts are now, as my last BMB was September 2014 and show 16% blasts. Have been through the Vidaza treatment it stop working, after 14months treatment. I now have the skin problems not sure if it is myleo cell build up or psoriasis they are ugly and I'm for ever cleaning up skin.
DX RCMD 2008 I guess what I'm asking for is any idea's on bed routine as mine has gotten to be not good going to bed between anything between 8-30 and 10-30 getting out of bed any thing between 9-30am and 11-30am
