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Old Tue Oct 21, 2008, 10:47 AM
ESeda ESeda is offline
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Join Date: May 2008
Location: Naples FL USA
Posts: 89
Hi Robin

Sorry you have to be going through this scary time with your mom. Welcome to the site, and ask any question you like, someone likely will ber able to answer it for you.

Let me say now that your mom has started Vidaza, this is a very good drug. Results have been very good for most patients treated with it. Just keep in mind not to be afraid if your mom's bc's drop early on when taking Vidaza. This is common. Actual response starts after maybe three or four cycles. My wife has be on Vidaza for six cycles and is doing well. So be patient.

By the way, do you know what level of blast she has and if there is any chromemesome damage. These are indicators you want to be aware of. Your mom is lucky to have a daughter who cares. God bless you and keep you strong.

Eli
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Eli, husband of Nellie (64), dx 3/08 MDS RAEB-1 w/abs, 2nd BMB 9/08 after 4 cyls blast dn to .5, Vidaza reduced 50% on 11/19 after sudden drop in CBC, 8th cycle completed 12/26/08. BMB 2/09 blast 17%. Seven day Induction Therapy completed 3/23/09, Started Salvage Therapy 5/5/09. Stopped 5/8/09.
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