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Old Sat Nov 23, 2013, 10:53 PM
curlygirl curlygirl is offline
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Join Date: Jun 2013
Posts: 151
Hello, all! As a short update, my son hasn't needed a platelet transfusion since late Aug and a blood transfusion since early Sept. His white blood cells haven't really gone up, and his hemoglobin was slowly declining, but now has been hanging out at 7.6 for the last 6 weeks. Wish it was more (and going up!) since you don't feel good when your hemoglobin is 7.6 but it's better than being below transfusion level! While I was reading about the anniversary of JFK's assassination, I happened to read about his "blood disorder", which now has a name (Addison's disease), so I was telling my son how one of our great Presidents had an autoimmune blood disorder as a child that made him very sick, but he grew up and became President of the US. That made him pretty happy, thinking that he could be President one day :-). Happy Thanksgiving!
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