View Single Post
  #8  
Old Sat Jan 10, 2015, 09:52 AM
Mseth Mseth is offline
Member
 
Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Hi MissyJ,

Sorry that your Dad has MDS. My mother's diagnosis happened in April 2013, almost 2 years now, she is red cell transfusion dependent since diagnosis. We had never heard of MDS and it took long to come to terms with it. Like your Dad, she too is not a candidate for transplant, given her age, and that we are in India. Though we have never discussed in detail, transplants are done in India only upto 50 years of age, I think.

After transfusion she feels fine and is able to manage all household chores independently. The world outside can never know she receives 'blood' regularly, unless they are told. Of course, the patient and caregiver has to come to terms with frequent hospital visits.

After diagnosis, the usual treatment protocol was tried, EPO which helps several people increase their Hb did nothing for her. Depending on your Dad's type of MDS and risk category, you will receive some treatment options, or the option of supportive care, which essentially means transfusions as and when required.

Hope things will be better for your Dad and you as you go along.
__________________
Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
Reply With Quote