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Hi again,
Yes to all three. Rash, itch and fever, but not every time. Sometimes it is just fever, other times just rash and so on. They always put a leukocyte filter on my blood line but I still insist that they run each unit of blood over 4 hours and not faster. When the blood runs faster I get really cold but also get a fever.
I don't know about platelets because I've never had to have them. I will try and remember to ask my brother whether he has a problem with his platelet transfusions. He doesn't like to talk about his illness, so I have to press him to get any information from him. However, he thinks I must be pretty tough. He has only ever had 1 BMB and didn't like it much (?). I have had 5 and don't like it much either but I tell him that it's nothing really "just a little scratch". Yes, sibling rivallary still exists into your 50s.
John Edward Cross Country is coming on and I love to watch it, So talk to you later.
Bye Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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