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I just received a phone call from a radiologist at the hospital x ray department. He has discussed my results with the neuro and I need to go back and have another MRI tomorrow. This time they are going to use another method.
He kept telling me "don't worry". I wasn't worried until he kept repeating that. MRIs aren't my favorite thing, I have a tendancy to claustrophobia if I let myself dwell on it. I have to concentrate on my breathing and try and make my muscles relax, as one of Australias former Prime Ministers famously said in the middle of a recession "life wasn't meant to be easy".
Bye for now.
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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