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Old Fri Feb 12, 2010, 11:13 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
John is post treatment and has not had BMB since diagnosis. He gets checked annually for PNH. He was not tested for TERC mutations since that discovery was not well known back in 2002.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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