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Old Sun Jul 31, 2011, 10:15 AM
JodyW JodyW is offline
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Join Date: Jun 2011
Location: westerville, ohio
Posts: 56
KimO,

It looks like are children are about the same age. Can you tell me what thought process the doctors used for beginning the taper? Were her numbers good so they said, lets try it? Was it just because it was 7 months? Did she go back on cyclo as soon as her numbers started to drop or was there some specific level that concerned them. I dont think Trevor's numbers are that high to be considering it. They say it is very toxic and they want him off as soon as possilbe, but these docs are not AA specialists so they may not have the same thought process as a AA specialist.

Thanks,
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Jody, mother or Trevor 23. Diagnosed VSAA 3/11 , ATG cyclosporin 3/11 response 6/11, Relapse 1/13, Round 2 ATG 1/13
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