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Old Thu Sep 29, 2016, 09:09 AM
Margaret W Margaret W is offline
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Join Date: Dec 2015
Location: Michigan
Posts: 31
Quote:
Originally Posted by FrankW View Post
Thank you Margaret for your feedback. Sounds like the early use of these drugs was just horrible. On the plus side you are still here 25-35 years later. Hope your quality of life is at least acceptable.
It is, yes, acceptable. Thanks! My son was in his early teens when I had the ATG and a nurse commented to me that at least, he was old enough that after I passed, he would remember me. Well, he's in his early forties now and got his Ph.D. at 25... I'm mostly in pain, but I can live with it for the time being. One day at a time; no bitterness. I am what "growing old with moderate to severe aplastic anemia" looks like. I pray, though, that more who visit here will be CURED, not grow old with the disease!!!

Margaret
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Margaret, SAA patient diagnosed 1972; ATG 1987; moderate AA for years; hep. C from transfusion 1987; now SAA is back.
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