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Old Sun Dec 18, 2016, 01:17 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Ellen,

Congratulations on your good response!

I recommend monthly CBCs for the first 6-9 months after stopping cyclosporine. If you relapse, it can happen as a sharp decline in counts, or it can be more gradual. If you are not checking your blood levels regularly and your counts are declining gradually, it will be difficult to notice the trend. If you are one of the people who are cyclosporine dependent, you want to catch a relapse early, so as to hopefully avoid going through ATG again.

You don't really need a BMB or further testing if your CBC is normal. The doctor's will investigate further if something looks suspicious in the blood work.

I hope you are one of the lucky ones and that you have a durable response!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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